The University of Rochester Medical Center has been named the recipient of a grant for sickle cell anemia treatment, a condition that disproportionately affects Black people and increases susceptibility to COVID-19.
URMC was one of five institutions to pull from a total of $250,000 in Access to Excellent Care for Sickle Cell Patients (ACCESS) grants from Global Blood Therapeutics. The funding to URMC will be specifically oriented toward transitional care from pediatric to adult sickle cell patients and community outreach.
Sickle cell. That’s something you've likely heard about, but don’t know much about. It’s a disease that just might impact someone you know - in the office, in the classroom, or in your neighborhood, but you probably wouldn’t be able to tell. Why? Because sickle cell is a disease that doesn’t necessarily show wear and tear on the outside, but on the inside it can do significant damage - damage that can lead to death. But in New York State and in the Rochester region, work is underway to breathe new life into efforts that would improve the prevention of complications and treatment of sickle cell disease.
It’s one of the most common genetic disorders in the United States. So why do some battling the illness question if they’ve been forgotten? On this edition of Need to Know -- the fight to survive, to improve treatment, to raise funding and to educate - all in the name of sickle cell. We’ll hear from those fighting the disease and from those in the medical field trenches, just ahead.
Also on the show, the incumbents in the race for Rochester City School Board explain why they want four more years. But is it enough to help bring needed change to the district?
It's one of the most common genetic diseases in our country affecting tens of thousands throughout the U.S. - including neighbors, friends and colleagues living in our region. Yet some patients and advocates say it doesn't garner the funding, and media coverage of other diseases - leaving some wondering if they've been forgotten. Doctors, patients and family members speak out and share what's being done to help combat sickle cell disease on the next Need to Know.