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autism

New guidelines from the American Academy of Pediatrics recommend specific autism screenings during well visits when children are 18 month and 24 months of age. Experts say doctors can gauge social milestones during those visits; those milestones could provide early signs of autism.

This hour, we discuss the new guidelines, and we talk about how to support children and young adults with developmental disabilities who are now at home and unable to access programs during the pandemic. Our guests:

  • Dr. Susan Hyman, M.D., professor of pediatrics, and division chief of developmental and behavioral pediatrics at Golisano Children's Hospital at Strong
  • Sarah Milko, executive director of AutismUp
  • Rachel Rosner, director of education and support services for AutismUp

This story is reported from WXXI’s Inclusion Desk

A new center for people with autism and their families has opened in Rochester.

The Golisano Autism Center is a “one-stop hub” for services and support for people with autism, said Ann Costello, director of the Golisano Foundation.

What do young adults with intellectual disabilities and their caregivers need to know as they prepare to exit the school system? It's a question that will be addressed at an upcoming conference hosted by Nazareth College and AutismUp.

We're joined by conference organizers and participants to discuss medical care, housing, employment, and more. In studio:

  • Rachel Rosner, director of education and support services for AutismUp
  • Cyndi Kerber Gowan, lecturer in education at Nazareth College and faculty liaison for LifePrep@Naz
  • Jake Collier, self-advocate

New York State has launched new, optional ID cards for people with intellectual and developmental disabilities. The goal is to help law enforcement and first responders better interact with people who may not be able to effectively explain the situations they are in.

The cards come with mixed reviews, especially on how effective they may be. We explore the issue with our guests. In studio:

Brett Dahlberg / WXXI News

 

Monroe County has averted running afoul of state and federal law -- at least temporarily -- by reshuffling employees in the public health department and staving off the creation of a waiting list for early childhood intervention services.

A film called "The Limits of My World" tells the story of a nonverbal young man with autism as he transitions from high school to adulthood. It will be screened at The Little Theatre on Monday, November 12. 

We talk about the challenges young adults like him face, and how parents, caregivers, and community members can help ease that transition. Our panel includes experts and parents who share their personal experiences. Our guests:

  • Sarah Milko, executive director of AutismUp, and parent of a teenager with autism
  • Dr. Stephen Sulkes, M.D., professor in the Department of Pediatrics at the University of Rochester Medical Center
  • Melissa Parrish, Golisano Autism Center Family Navigator at the Boys and Girls Club of Rochester, and parent of a teenager with autism
  • Heather Cassano, director of “The Limits of My World”

This story is reported from WXXI’s Inclusion Desk

Tianna Manon/WXXI News

The old Gates police substation in Westgate Plaza has sat empty for roughly a decade. But on Thursday, the Autism Council cut the ribbon for the station’s new life as the Autism Family Information and Referral Services Center.

The center is a one-stop shop for families, educators and people with autism who need help with education, employment or wellness. It doesn’t provide specific services, but staff there meet with drop-in visitors to send them where they need to go.

The tragic death of a city teen is causing a community to rethink how it assists families with autism. On this edition of Need to Know we learn about the work to bring support and crisis services to those in need.

Also on the show, it’s known as one of the least diverse professions in our nation. We’ll hear about efforts to diversify the local legal field.

And from a distance, her pieces look like landscape paintings. Up close, something else jumps out at you. Don’t miss the work of artist Victoria Connors.

We discuss disparities in autism diagnosis and treatment. The death of Trevyan Rowe has pushed the Golisano Autism Center to speed up plans to provide some services to families of children with autism in the City of Rochester.

According to the CDC, about 1 in 59 children has been diagnosed with autism spectrum disorder (ASD), and the percentage of autism among African American and Hispanic children is nearing the percentage in white children. But African American and Hispanic children are less likely to receive ASD diagnoses and intervention services. Why? Studies point to a number of factors, including parent education, difficulty navigating the medical system, cultural barriers, and more.

We talk to the team at the Golisano Autism Center about how they hope to reduce those gaps in the near future. In studio:

Matt Savage is not just a musical prodigy who has become an international talent; he's one of the inspiring autism stories on the arts scene.

Savage will play two shows at the opening night of the Xerox Rochester International Jazz Festival; then he's heading off on a kind of world tour.

He joins us to discuss his talent, and how to learned to cultivate it, despite growing up without much music in the house in his early childhood. Our guests:

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