WXXI AM News

parkinson's disease

Dr. Ray Dorsey at the University of Rochester Medical Center has written a new book on Parkinson’s disease. The disease is the fastest growing neurological condition in the world. Dorsey’s book is a “prescription for action.” He outlines the causes for the disease – many of them environmental – and directives for how to prevent the condition.

He joins us this hour to discuss his research. We also hear from a local woman living with Parkinson’s disease. Our guests:

  • Dr. Ray Dorsey, M.D., David M. Levy Professor of Neurology, director of the Center for Health and Technology at the University of Rochester Medical Center, and author of "Ending Parkinson's Disease"
  • Yvonne Hylton, woman living with Parkinson’s disease

We have a conversation about Parkinson’s disease – specifically, how women experience the disease differently from men. The Parkinson’s Foundation has created a new woman-focused agenda, which addresses gender disparities in research and treatment. 

This hour, we discuss women’s health priorities when it comes to Parkinson’s, and our guests help us understand the unique symptoms and challenges faced by female Parkinson’s patients. Our guests:

  • Dr. Ruth Schneider, M.D., assistant professor in the Department of Neurology and the Movement Disorders Program at the University of Rochester Medical Center
  • Dr. Michelle Burack, M.D., movement disorders specialist and advisory board member for the local chapter of the Parkinson's Foundation
  • Yvonne Hylton, Parkinson’s patient advocate
  • Megan Feeney, senior manager of community engagement at the Parkinson’s Foundation

University of Rochester Medical Center

The University of Rochester Medical Center has received a multimillion-dollar federal grant to study Parkinson’s disease, the university announced Wednesday. The $9.2 million award will fund the creation of a new research center, officials said.

“We are currently in the midst of a Parkinson’s pandemic,” said Ray Dorsey, the principal investigator of the new center. “The number of people with Parkinson’s disease globally has doubled from 1990 to 2015, and absent change, the number of people with Parkinson’s disease will double again in the coming 25 years.”

Frank De Blase is a well known music writer and photographer, and he's using his pen to tell the story of his own struggle with Parkinson's.

Frank writes about the new medical marijuana system: where does someone go to get it? What's the process like? It's an illuminating look at this young enterprise in New York State. Our guests:

  • Frank De Blase, music writer, photographer, and Parkinson’s disease patient
  • Dr. Michelle Burack, assistant professor in the Department of Neurology, and clinical director for surgical therapies for the Movement Disorder Program at the University of Rochester Medical Center
  • Dr. Robert Horowitz, M.D., chief and professor of palliative care in the Department of Medicine at the University of Rochester Medical Center

There's new research related to Parkinson's disease, and some of it is being done at the University of Rochester Medical Center. URMC is involved in several studies testing drugs in clinical trials, which could eventually slow the progression of the disease. They're trying to measure patients' response to treatment.

We explore the new research, while hearing from patients. We also preview an upcoming symposium on Parkinson's disease in Rochester. Our guests:

We look at the very latest in cutting edge Parkinson's disease research, including the work being done here in Rochester to help patients live their best lives. One of our guests discusses her own challenges of living with PD.

In studio: 

  • Yvonne Hylton, Parkinson’s disease patient   
  • Patricia Smith, caregiver
  • Dr. Ray Dorsey, MD, MBA, director of the Center for Human Experimental Therapeutics (CHET) at the University of Rochester Medical Center
  • Dr. Ruth Schneider, MD, senior instructor in the Department of Neurology, movement Disorders at the University of Rochester Medical Center

In this Move to Include conversation, we explore how Rochester has become a town more welcoming to people living with Parkinson's Disease. From diagnosis to research to resources, we cover it all. Our guests:

  • Dennis Whitney, president of the National Parkinson Foundation of Greater Rochester, and the primary caregiver for his wife
  • Bill Carpenter, board member for the foundation and the caregiver for his wife
  • Flo Dorsey, living with Parkinson's Disease
  • Michelle Burack, assistant professor of neurology at the University of Rochester Medical Center