WXXI AM News

Inclusion Desk

University of Rochester Medical Center

A local autism researcher is being remembered as a pioneer in the field whose work significantly changed the approach to autism spectrum disorder.

Tristram Smith died of a heart attack on Monday. He was 57.

“His brain was a national treasure,” said Susan Hyman, M.D., chief of Developmental and Behavioral Pediatrics at URMC. “It was because of his work that families could have the hope that their children would gain skills. It really has changed how we in Rochester and nationally treat young children with autism."

Provided

Laurel Hunter spells her last name, "H-U-N-T-E-the sound a pirate makes."

She has a lisp and is the daughter of a deaf adult.

"I can’t always hear the difference between certain sounds," she says. "That means partly that I can’t hear accents and partly that I can’t say my own name!"

Schools across the country are making their classrooms more inclusive to people with disabilities by including things like appropriate desks and interpreters, but how a classroom sounds can have a big effect on who can learn in it.

Edward Steinfeld is a professor of architecture and Director for the Center of Inclusive Design and Environmental Access at the University at Buffalo.

The death of 14-year-old Trevyan Rowe continues to haunt the Rochester community. It was on March 11th when the teen’s body was recovered from the Genesee River. Trevyan had autism.

When he got off the school bus on the morning of March 8th to attend the RCSD’s School 12, he apparently never entered the building and wandered away. As to how this could have happened, accusations ensue. But working to find ways to ensure it doesn’t happen again has driven the work of lead partners in the Golisano Autism Center. They have developed a new plan being implemented this summer to support families with autism in crisis situations.

freeimages.com/Julia Freeman-Woolpert

Deaf individuals are up to seven times as likely as their hearing peers to have heart disease, high blood pressure, and strokes.

That's according to research from RIT's National Technical Institute for the Deaf and the University of Michigan.

Professor Peter Hauser, director of NTID's Center on Cognition and Language, recently reported to a UN committee in Geneva, Switzerland about the problem.

Hauser said, through an interpreter, these health disparities are the result of knowledge gaps in the deaf community.

Brett Sobieraski/Facebook

A Rochester Police Sergeant is running a very long way this weekend in an effort to raise money for Special Olympics.

Brett Sobieraski started running on Friday from Buffalo and will run along or near the Erie Canal all the way to Syracuse, where he expects to finish up late Sunday morning.

His goal is to run for 50 hours, to help celebrate the 50th anniversary of Special Olympics.

Prime Care Coordination, described by its executive director Tracy Boff as “an umbrella organization” for groups that aid people with disabilities, has opened its regional hub in Webster.

“This is going to coordinate all of a person’s care including their medical care, behavioral health needs, social needs, their housing — all of their needs,” Boff said.

Prime Care, a Medicaid-funded company wholly owned by non-profit agencies, has replaced the Medicaid Service Coordination program, which until July 1 handled medical and social services for people with disabilities.

New York agency to protect disabled vows more transparency

Jul 5, 2018
New York State Justice Center for the Protection of People with Special Needs

ALBANY — New York's agency tasked with investigating accusations of abuse and neglect against disabled people in state care is promising to improve transparency following years of complaints about conducting nearly all of its work in secret.

Denise Miranda took over last year as executive director of the Justice Center for the Protection of People with Special Needs.

freeimages.com/Thomas Picard

The founder of Rochester's first film camp for deaf and hard of hearing youth is offering a workshop at Writers and Books this summer.

Speaking through an interpreter, Stacy Lawrence said she wants to share her passion for filmmaking with kids and help them understand what they are capable of.

"I want these children to realize that they are in the same company as wonderful deaf artists and deaf poets right here in Rochester, right under our noses."

Reports of sexual abuse of individuals with disabilities in New York State funded and licensed facilities will now be investigated by a newly created response team.

The Justice Center for the Protection of People with Special Needs says the establishment of the specially trained team comes at a critical time.

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