The Inclusion Desk is a multi-platform reporting effort by WXXI News to inform and transform attitudes and behavior about inclusion. The Inclusion Desk grew from the Move to Include partnership between WXXI and the Golisano Foundation. Through programming and special events, WXXI and the Golisano Foundation look to build a more inclusive community by inspiring and motivating people to embrace different abilities and include all people in every aspect of community life.
Damage to the brain and the nervous system, headaches, hearing loss and other illnesses can all be caused by lead poisoning. On this edition of Need to Know Rochester we look at new stats in the Greater Rochester community on this preventable disease. Also on the show – from a body bag to a stage sharing his story around the country. We’ll learn about local man Fantastic Frank Johnson’s journey to turn disability into ability and his hope of inspiring millions in the process. And NPR’s Michele Norris makes a stop in Rochester to give us a peek into America’s views about race through her Race Card Project.
A discussion about employment for people with disabilities.
The employment rate for people with disabilities is 20%. That's it. But for those who are part of Project SEARCH, it's 87%. How does it work? Who is benefiting? We'll meet some success stories and learn how local businesses can get involved.
· Julie Christensen, director of employment programs at the Strong Center for Developmental Disabilities at the University of Rochester Medical Center
· Gabrielle Brandenberg, employment specialist (job coach) from Arc of Monroe
· Sam Kastner, a Project SEARCH student who is seeking employment
· Ernestine Garries, a former Project SEARCH student in the same class as Sam but who was snapped up by URMC’s Environmental Services department before graduating
· Linda Schmitt, nurse manager for the 6-3400 at UR Medicine’s Strong Memorial Hospital, with whom Sam is currently an intern.
A number of local organizations are trying to change the way that people with intellectual and physical disabilities are perceived. Officials with these groups realize there are some longstanding assumptions that have to be challenged.
A national speaker who has spent his career trying to create a "cultural shift" spoke at a seminar in Batavia today.
Al Condeluci is the CEO of United Cerebral Palsy of Pittsburgh. He says his cousin, Carrie, first inspired his wish to transform people's thinking about how to include citizens with disabilities so they are not just out in the community but part of the community.
You can hear our interview with Condeluci by clicking on the audio link above.
Wednesday is the seventh annual World Autism Awareness Day, and a number of activities are being held locally including the lighting up of the outside of the Rundel Library in downtown Rochester with blue lights. Blue is the color being used worldwide to promote better understanding and treatment of autism, and locally, the advocacy organization 'AutismUp' is out in the community providing information.
Rochester rallied to stop the use of the R-Word - specifically" retard" or "retarded" - on Wednesday. It's part of the Spread the Word to End the Word campaign.
"I used to be somebody who used that word,” says Sarah Defendorf, who works with kids with intellectual disabilities. She is one of more than a hundred people supporting the movement to not use the r-word.
"I didn't realize how derogatory it can be until I could see how people feel when they're called those words. I think it's a word that doesn't need to be used."
Defendorf signed the Spread the Word to End the Word campaign pledge, which was on a large poster in the cafe at the URMC. Participants also sign-in electronically on a tablet.
"Signing the pledge shows how many people in Rochester actually support the movement,” says Stephanie Straka, a development pediatrician at the Golisano Children's Hospital. “Then nationally, we can use those pledges as numbers to help things that change in Congress, things that change within the media - to really help others and the media understand that there's a population out there when you use the r-word they are really hurt.”
The effort asks people to choose other words when talking about people with intellectual disabilities.
The director of the Golisano Foundation, Ann Costello, says the offensive word is increasingly creeping into everyday language.
"And often time’s people who use it don't mean to be hurtful. It’s just a common word. But we need to education others and raise awareness that this does hurt people with intellectual disabilities. It perpetuates the stigma and the negative perceptions."
This is the foundation’s fourth year spearheading the campaign pledge.
Spread the Word the End the Word was started by youth and is an ongoing effort of Special Olympics International, Best Buddies and other supporters.
Costello says she's hoping the campaign helps people to stop and think before using the r-word. And then replacing it with this one: respect.
As Governor Cuomo and state lawmakers work to come to terms on a new state budget, a number of groups have been looking to Albany for more help. Among them, two organizations that serve those with developmental disabilities, NYSARC and the Cerebral Palsy Associations of New York State.
Ben Golden is Government Affairs Director for NYSARC. He says they are urging legislators to include a three percent wage increase for direct support workers who care for those with developmental disabilities.