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Connections

How to improve quality of life for people living with ALS and their caregivers

Four people wearing headphones sit at a table in a radio talk studio: the man on the far left is wearing glasses, a light orange long sleeved button down shirt, khaki pants and blue sneakers; the woman on the near left has short grey hair and is wearing a white long sleeved button down shirt with brown stripes; the man on the near right has short light hair and a beard and is wearing a blue long sleeved button down shirt; the man on the far right has short dark hair and is wearing a blue long sleeved button down shirt with jeans.
Julie Williams
/
WXXI News
(foreground) Joel Shamaskin, (background) Cathy Powers and Charles Thornton on "Connections with Evan Dawson" on Thursday, August 8, 2024

A new report outlines how amyotrophic lateral sclerosis (ALS) can be made a livable disease within a decade. We talk to experts, caregivers, and people living with ALS about improving quality of life for patients and families.

Our guests:

  • Joel Shamaskin, M.D., retired physician living with ALS
  • Charles Thornton, M.D., Saunders Family Distinguished Professor in Neuromuscular Research, and professor in the Departments of Neurology and Neuroscience at UR Medicine
  • Rabecca Coulter, LMSW, managing director of care services at the ALS Association
  • Cathy Powers, caregiver for her late husband, Bryan

This story is reported from WXXI’s Inclusion Desk.

To access a transcript of this discussion, please click here.

*To request transcripts of other episodes of "Connections with Evan Dawson," please email our Move to Include team with the day and time (noon or 1 pm) of the broadcast.

Evan Dawson is the host of "Connections with Evan Dawson." He joined WXXI in January 2014 after working at 13WHAM-TV, where he served as morning news anchor. He was hired as a reporter for 13WHAM-TV in 2003 before being promoted to anchor in 2007.
Megan Mack is the executive producer of "Connections with Evan Dawson" and live/televised engagement programming.
Julie Williams is an associate producer for "Connections with Evan Dawson" and is also the office administrator for radio, news and technology and operations. She started at WXXI in 2019 and has been working on Connections since 2022.