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The death of 14-year-old Trevyan Rowe continues to haunt the Rochester community. It was on March 11th when the teen’s body was recovered from the Genesee River. Trevyan had autism.

When he got off the school bus on the morning of March 8th to attend the RCSD’s School 12, he apparently never entered the building and wandered away. As to how this could have happened, accusations ensue. But working to find ways to ensure it doesn’t happen again has driven the work of lead partners in the Golisano Autism Center. They have developed a new plan being implemented this summer to support families with autism in crisis situations.

The tragic death of a city teen is causing a community to rethink how it assists families with autism. On this edition of Need to Know we learn about the work to bring support and crisis services to those in need.

Also on the show, it’s known as one of the least diverse professions in our nation. We’ll hear about efforts to diversify the local legal field.

And from a distance, her pieces look like landscape paintings. Up close, something else jumps out at you. Don’t miss the work of artist Victoria Connors.

freeimages.com/Julia Freeman-Woolpert

Deaf individuals are up to seven times as likely as their hearing peers to have heart disease, high blood pressure, and strokes.

That's according to research from RIT's National Technical Institute for the Deaf and the University of Michigan.

Professor Peter Hauser, director of NTID's Center on Cognition and Language, recently reported to a UN committee in Geneva, Switzerland about the problem.

Hauser said, through an interpreter, these health disparities are the result of knowledge gaps in the deaf community.

Brett Sobieraski/Facebook

A Rochester Police Sergeant is running a very long way this weekend in an effort to raise money for Special Olympics.

Brett Sobieraski started running on Friday from Buffalo and will run along or near the Erie Canal all the way to Syracuse, where he expects to finish up late Sunday morning.

His goal is to run for 50 hours, to help celebrate the 50th anniversary of Special Olympics.

It was a hot day at the zoo when Jordan Carlson's son, who has motor-planning delays, got thirsty. "We went to the snack bar and found out they had a 'no straw' policy," Carlson says. "It was a hot day and he couldn't drink."

Prime Care Coordination, described by its executive director Tracy Boff as “an umbrella organization” for groups that aid people with disabilities, has opened its regional hub in Webster.

“This is going to coordinate all of a person’s care including their medical care, behavioral health needs, social needs, their housing — all of their needs,” Boff said.

Prime Care, a Medicaid-funded company wholly owned by non-profit agencies, has replaced the Medicaid Service Coordination program, which until July 1 handled medical and social services for people with disabilities.

His is a legacy unlike any other. On this edition of Need to Know, how famed writer, orator and abolitionist Frederick Douglass continues to impact our society and why a community is working together to ensure that legacy lives on.

Also on the show, a story of adversity, resilience, and beating the odds. A recent high school graduate and filmmaker explains what it means to take the Long Way Home.

New York agency to protect disabled vows more transparency

Jul 5, 2018
New York State Justice Center for the Protection of People with Special Needs

ALBANY — New York's agency tasked with investigating accusations of abuse and neglect against disabled people in state care is promising to improve transparency following years of complaints about conducting nearly all of its work in secret.

Denise Miranda took over last year as executive director of the Justice Center for the Protection of People with Special Needs.

We discuss disparities in autism diagnosis and treatment. The death of Trevyan Rowe has pushed the Golisano Autism Center to speed up plans to provide some services to families of children with autism in the City of Rochester.

According to the CDC, about 1 in 59 children has been diagnosed with autism spectrum disorder (ASD), and the percentage of autism among African American and Hispanic children is nearing the percentage in white children. But African American and Hispanic children are less likely to receive ASD diagnoses and intervention services. Why? Studies point to a number of factors, including parent education, difficulty navigating the medical system, cultural barriers, and more.

We talk to the team at the Golisano Autism Center about how they hope to reduce those gaps in the near future. In studio:

freeimages.com/Thomas Picard

The founder of Rochester's first film camp for deaf and hard of hearing youth is offering a workshop at Writers and Books this summer.

Speaking through an interpreter, Stacy Lawrence said she wants to share her passion for filmmaking with kids and help them understand what they are capable of.

"I want these children to realize that they are in the same company as wonderful deaf artists and deaf poets right here in Rochester, right under our noses."

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