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Inclusion Desk

The Inclusion Desk is a multi-platform reporting effort by WXXI News to inform and transform attitudes and behavior about inclusion. The Inclusion Desk grew from the Move to Include partnership between WXXI and the Golisano Foundation. Through programming and special events, WXXI and the Golisano Foundation look to build a more inclusive community by inspiring and motivating people to embrace different abilities and include all people in every aspect of community life.

nysenate.gov

People with special needs will have access to new ID cards that state Sen. Pam Helming says will help them communicate with emergency responders.

Veronica Volk / WXXI News

Luticha Doucette always knew she wanted to be a scientist, even if no one else thought she could do it.

"I was very much discouraged from going into the sciences. People would be like, 'Well, don’t you want to be a teacher?' And I would be like, yeah, teachers are great, but that’s not what my heart was in."

University of Rochester Medical Center

A local autism researcher is being remembered as a pioneer in the field whose work significantly changed the approach to autism spectrum disorder.

Tristram Smith died of a heart attack on Monday. He was 57.

“His brain was a national treasure,” said Susan Hyman, M.D., chief of Developmental and Behavioral Pediatrics at URMC. “It was because of his work that families could have the hope that their children would gain skills. It really has changed how we in Rochester and nationally treat young children with autism."

Provided

Laurel Hunter spells her last name, "H-U-N-T-E-the sound a pirate makes."

She has a lisp and is the daughter of a deaf adult.

"I can’t always hear the difference between certain sounds," she says. "That means partly that I can’t hear accents and partly that I can’t say my own name!"

The death of 14-year-old Trevyan Rowe continues to haunt the Rochester community. It was on March 11th when the teen’s body was recovered from the Genesee River. Trevyan had autism.

When he got off the school bus on the morning of March 8th to attend the RCSD’s School 12, he apparently never entered the building and wandered away. As to how this could have happened, accusations ensue. But working to find ways to ensure it doesn’t happen again has driven the work of lead partners in the Golisano Autism Center. They have developed a new plan being implemented this summer to support families with autism in crisis situations.

The tragic death of a city teen is causing a community to rethink how it assists families with autism. On this edition of Need to Know we learn about the work to bring support and crisis services to those in need.

Also on the show, it’s known as one of the least diverse professions in our nation. We’ll hear about efforts to diversify the local legal field.

And from a distance, her pieces look like landscape paintings. Up close, something else jumps out at you. Don’t miss the work of artist Victoria Connors.

freeimages.com/Julia Freeman-Woolpert

Deaf individuals are up to seven times as likely as their hearing peers to have heart disease, high blood pressure, and strokes.

That's according to research from RIT's National Technical Institute for the Deaf and the University of Michigan.

Professor Peter Hauser, director of NTID's Center on Cognition and Language, recently reported to a UN committee in Geneva, Switzerland about the problem.

Hauser said, through an interpreter, these health disparities are the result of knowledge gaps in the deaf community.

Brett Sobieraski/Facebook

A Rochester Police Sergeant is running a very long way this weekend in an effort to raise money for Special Olympics.

Brett Sobieraski started running on Friday from Buffalo and will run along or near the Erie Canal all the way to Syracuse, where he expects to finish up late Sunday morning.

His goal is to run for 50 hours, to help celebrate the 50th anniversary of Special Olympics.

It was a hot day at the zoo when Jordan Carlson's son, who has motor-planning delays, got thirsty. "We went to the snack bar and found out they had a 'no straw' policy," Carlson says. "It was a hot day and he couldn't drink."

Prime Care Coordination, described by its executive director Tracy Boff as “an umbrella organization” for groups that aid people with disabilities, has opened its regional hub in Webster.

“This is going to coordinate all of a person’s care including their medical care, behavioral health needs, social needs, their housing — all of their needs,” Boff said.

Prime Care, a Medicaid-funded company wholly owned by non-profit agencies, has replaced the Medicaid Service Coordination program, which until July 1 handled medical and social services for people with disabilities.

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